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January 13, 2023

Haystack's comments on improving coverage for individuals dully-eligible for Medicare and Medicaid→

January 13, 2023/ Michelle Osburn

Read more.

January 13, 2023/ Michelle Osburn/ /Source
Comment Letters, Letters
comment letter, medicare, medicaid

Michelle Osburn

November 03, 2022

Haystack Response to CMS' Make Your Voice Heard RFI→

November 03, 2022/ Michelle Osburn

Read here.

November 03, 2022/ Michelle Osburn/ /Source
Letters
other issues, medicare, medicaid

Michelle Osburn

August 01, 2022

Haystack Responds to HHS RFI on Improving Primary Care

August 01, 2022/ Michelle Osburn

Read more.

August 01, 2022/ Michelle Osburn/ /Source
Comment Letters, Letters
miscellaneous, Medicare, Medicaid

Michelle Osburn

June 17, 2022

Haystack Project's reply to CMS' Hospital Inpatient Prospective Payment Systems→

June 17, 2022/ Michelle Osburn

Read more.

June 17, 2022/ Michelle Osburn/ /Source
Letters
medicare, news

Michelle Osburn

May 20, 2022

Comments on Senate HELP Committee May 2022 Draft UFA Package→

May 20, 2022/ Michelle Osburn

Read more.

May 20, 2022/ Michelle Osburn/ /Source
Letters, Comment Letters
HELP, HEART Act

Michelle Osburn

February 21, 2022

Rep. Matsui releases "Dear Colleagues" letter, asking for co-sponsors for HR6160.→

February 21, 2022/ Michelle Osburn

Read more.

February 21, 2022/ Michelle Osburn/ /Source
Letters
rare

Michelle Osburn

February 10, 2022

Haystack Project's sign-on letter commenting to CMS' proposed NCA for monoclonal antibodies→

February 10, 2022/ Michelle Osburn

Read more.

February 10, 2022/ Michelle Osburn/ /Source
Letters, Comment Letters, Position Statements
news, medicare, medicaid, other issues

Michelle Osburn

January 27, 2022

Haystack Project's comment letter on the HHS Notice of Benefit and Payment Parameters for 2023 of the Patient Protection and Affordable Care Act→

January 27, 2022/ Michelle Osburn

Read more.

January 27, 2022/ Michelle Osburn/ /Source
Comment Letters, Letters
ACA, NPBB, comment letter, other issues

Michelle Osburn

December 10, 2021

Haystack's SDOH caucus letter, dated 12-10-2021→

December 10, 2021/ Michelle Osburn

Read more

December 10, 2021/ Michelle Osburn/ /Source
Comment Letters, Letters
other issues, heat

Michelle Osburn

December 07, 2021

Haystack Project Applauds Introduction of the Access to Rare Indications Act→

December 07, 2021/ Michelle Osburn

Read more

December 07, 2021/ Michelle Osburn/ /Source
Letters
rare, RIA, medicare, medicaid, Haystack

Michelle Osburn

October 20, 2021

Guidance on Coordinating Care Provided By Out-of-State Providers for Children with Medically Complex Conditions→

October 20, 2021/ Michelle Osburn

Read more

October 20, 2021/ Michelle Osburn/ /Source
Comment Letters, Letters
medicaid, medicare

Michelle Osburn

October 04, 2021

Reasonable & Necessary →

October 04, 2021/ Guest User

Read more.

October 04, 2021/ Guest User/ /Source
Comment Letters, Letters
medicare

Guest User

September 09, 2021

Medicare Part D Out of Pocket Letter→

September 09, 2021/ Rebecca Balliet

Read more.

September 09, 2021/ Rebecca Balliet/ /Source
Comment Letters, Letters
medicare

Rebecca Balliet

August 10, 2021

Tuberous Sclerosis Alliance opposes MACPAC recommendations regarding differential Medicaid rebates for FDA accelerated approval drugs→

August 10, 2021/ Rebecca Balliet

Read more.

August 10, 2021/ Rebecca Balliet/ /Source
Comment Letters, Letters
medicaid, Medicaid, FDA

Rebecca Balliet

August 10, 2021

Hospital Inpatient Prospective Payment Systems for Acute Care - APF IPPS Letter→

August 10, 2021/ Rebecca Balliet

Read more.

August 10, 2021/ Rebecca Balliet/ /Source
Letters, Comment Letters
medicare

Rebecca Balliet

August 10, 2021

Hospital Inpatient Prospective Payment Systems for Acute Care→

August 10, 2021/ Rebecca Balliet

Read more.

August 10, 2021/ Rebecca Balliet/ /Source
Comment Letters, Letters
medicare

Rebecca Balliet

July 19, 2021

CURES 2.0 Letter

July 19, 2021/ Rebecca Balliet

Read more.

July 19, 2021/ Rebecca Balliet/ /Source
Letters, Comment Letters
other issues, Haystack

Rebecca Balliet

July 17, 2021

Support House Passage- HEART Act 5.06.21 (Senate) (1)→

July 17, 2021/ Rebecca Balliet

Read more.

July 17, 2021/ Rebecca Balliet/ /Source
Comment Letters, Letters
medicaid, Medicaid

Rebecca Balliet

July 17, 2021

Support House Passage- HEART Act 5.06.21 (House) →

July 17, 2021/ Rebecca Balliet

Read more.

July 17, 2021/ Rebecca Balliet/ /Source
Letters, Comment Letters
medicaid, Medicaid

Rebecca Balliet

March 23, 2021

Haystack opposes MACPAC recommendations regarding differential Medicaid rebates for FDA accelerated approval drugs Mar 23, 2021→

March 23, 2021/ Rebecca Balliet

Read more.

March 23, 2021/ Rebecca Balliet/ /Source
Letters, Comment Letters
medicaid, Medicaid

Rebecca Balliet

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The Haystack Project is a 501(c)3 nonprofit that brings together patients organizations representing patients suffering from or caring for patients with extremely rare diseases. Our mission is to educate policymakers and other stakeholders about the need for policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.