Wednesday, October 23, 2024: Capitol Hill Event - When Exceptions Need Their Own Rule: A New Rare Disease Approval Pathway
moderated by Janet Woodcock Haystack Project’s mission-focused advisor
Panelists:
Kara Berasi Haystack Project, CEO
Jeanne Ireland Former Senior Advisor to the Commissioner, FDA
David Fox Former Associate Chief Counsel, FDA
Tam Roshan Lal Chief Medical Officer, Uncommon Cure
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The Haystack Project is a 501(c)3 nonprofit that brings together patients organizations representing patients suffering from or caring for patients with extremely rare diseases. Our mission is to educate policymakers and other stakeholders about the need for policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.
