H.R. 6094 will make it easier for rare disease patients to get the treatments our doctors say we need. It’s not about ‘special treatment’ for rare diseases. It’s about equal footing with those living with more common conditions.
The “Access to Rare Indications ACT” is now the “PROTECT Rare Act”
Please consider making a tax-deductible donation to support the Haystack Project today.
The Haystack Project is a 501(c)3 nonprofit that brings together patients organizations representing patients suffering from or caring for patients with extremely rare diseases. Our mission is to educate policymakers and other stakeholders about the need for policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.
