PROTECT Rare Act
(formerly the Access to Rare Indications Act)
This bill levels the playing field for rare disease patients trying to access medically necessary care by requiring insurance companies to use additional sources to determine if off-label treatment is medically necessary.
Here you can find everything you need to advocate for the bill on our page.
HEART Act
The HEART Act was enacted as part of the Omnibus (P.L. 117-103). Haystack Project will continue engaging on the implementation of the bill. Read more here.