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Featured
Haystack Project Support of HR 485
Feb 12, 2024
Haystack Project Support of HR 485
Feb 12, 2024
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Feb 12, 2024
POV Report - Choroideremia
Mar 3, 2023
POV Report - Choroideremia
Mar 3, 2023
Read More →
Mar 3, 2023
POV Report - Uveal Melanoma
Dec 26, 2021
POV Report - Uveal Melanoma
Dec 26, 2021
Read More →
Dec 26, 2021
Defining Value - For Us or With Us: Moving Us to Patient Oriented Value
Dec 31, 2019
Defining Value - For Us or With Us: Moving Us to Patient Oriented Value
Dec 31, 2019
Read More →
Dec 31, 2019
ICER Curative Treatment Proposed Methodology Circulation
Sep 6, 2019
ICER Curative Treatment Proposed Methodology Circulation
Sep 6, 2019
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Sep 6, 2019
Comments on ICER Value Framework Update for 2020
Jun 10, 2019
Comments on ICER Value Framework Update for 2020
Jun 10, 2019
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Jun 10, 2019
CVS announcement of cost-effective benchmarks puts ICER in the spotlight
Aug 28, 2018
CVS announcement of cost-effective benchmarks puts ICER in the spotlight
Aug 28, 2018
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Aug 28, 2018
ICER Ultra-Rare Disease Comment
Sep 25, 2017
ICER Ultra-Rare Disease Comment
Sep 25, 2017
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Sep 25, 2017
Orphan Drug Assessment: Final Meeting Report and Proposed Framework Changes
Aug 24, 2017
Orphan Drug Assessment: Final Meeting Report and Proposed Framework Changes
Aug 24, 2017
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Aug 24, 2017
Chimeric Antigen Receptor T-Cell Therapy for B-Cell Cancers: Effectiveness and Value
Aug 24, 2017
Chimeric Antigen Receptor T-Cell Therapy for B-Cell Cancers: Effectiveness and Value
Aug 24, 2017
Read More →
Aug 24, 2017

Featured Content

Featured
ICER Eyes Gene Therapy: Category-wide Policy In Works As Spark Moves To Approval
Jul 5, 2017
ICER Eyes Gene Therapy: Category-wide Policy In Works As Spark Moves To Approval
Jul 5, 2017
Read More →
Jul 5, 2017
 
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The Haystack Project is a 501(c)3 nonprofit that brings together patients organizations representing patients suffering from or caring for patients with extremely rare diseases. Our mission is to educate policymakers and other stakeholders about the need for policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.