ICER

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February 12, 2024

Haystack Project Support of HR 485

February 12, 2024

March 3, 2023

POV Report - Choroideremia

March 3, 2023

December 26, 2021

POV Report - Uveal Melanoma

December 26, 2021

December 31, 2019

Defining Value - For Us or With Us: Moving Us to Patient Oriented Value

December 31, 2019

September 6, 2019

ICER Curative Treatment Proposed Methodology Circulation

September 6, 2019

June 10, 2019

Comments on ICER Value Framework Update for 2020

June 10, 2019

August 28, 2018

CVS announcement of cost-effective benchmarks puts ICER in the spotlight

August 28, 2018

September 25, 2017

ICER Ultra-Rare Disease Comment

September 25, 2017

August 24, 2017

Orphan Drug Assessment: Final Meeting Report and Proposed Framework Changes

August 24, 2017

Chimeric Antigen Receptor T-Cell Therapy for B-Cell Cancers: Effectiveness and Value

August 24, 2017

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July 5, 2017

ICER Eyes Gene Therapy: Category-wide Policy In Works As Spark Moves To Approval

July 5, 2017

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The Haystack Project is a 501(c)3 nonprofit that brings together patients organizations representing patients suffering from or caring for patients with extremely rare diseases. Our mission is to educate policymakers and other stakeholders about the need for policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.

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