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March 14, 2023

Haystack's comments in response to CMS' Notice of proposed rulemaking on Advancing Interoperability & Improving Prior Authorization Processes→

March 14, 2023/ Michelle Osburn

Read more.

March 14, 2023/ Michelle Osburn/ /Source
Comment Letters, Letters
medicaid, medicare

Michelle Osburn

March 13, 2023

Haystack's Comments in response to CMS' Medicare Part B Inflation Rebate Guidance→

March 13, 2023/ Michelle Osburn

Read more.

March 13, 2023/ Michelle Osburn/ /Source
Comment Letters, Letters
medicaid, medicare, IRA

Michelle Osburn

March 11, 2023

Haystack's comments in response to CMS' Medicare Part D Inflation Rebate Guidance→

March 11, 2023/ Michelle Osburn

Read more.

March 11, 2023/ Michelle Osburn/ /Source
Comment Letters, Letters
medicare, medicaid, IRA

Michelle Osburn

February 13, 2023

Haystack's Comments on CMS Proposal to Oppose For Rare Diseases→

February 13, 2023/ Michelle Osburn

Read more.

February 13, 2023/ Michelle Osburn/ /Source
Comment Letters, Letters
medicaid, medicare

Michelle Osburn

January 30, 2023

Haystack's comments on CMS' RFI related to EHB under the ACA→

January 30, 2023/ Michelle Osburn

Read more.

January 30, 2023/ Michelle Osburn/ /Source
Comment Letters, Letters
medicaid, medicare, affordable care act

Michelle Osburn

January 13, 2023

Haystack's comments on improving coverage for individuals dully-eligible for Medicare and Medicaid→

January 13, 2023/ Michelle Osburn

Read more.

January 13, 2023/ Michelle Osburn/ /Source
Comment Letters, Letters
comment letter, medicare, medicaid

Michelle Osburn

November 07, 2022

Haystack's comments to CMS on Streamlining Renewal Processes→

November 07, 2022/ Michelle Osburn

Read more.

November 07, 2022/ Michelle Osburn/ /Source
Comment Letters
medicaid, cms

Michelle Osburn

November 03, 2022

Haystack Response to CMS' Make Your Voice Heard RFI→

November 03, 2022/ Michelle Osburn

Read here.

November 03, 2022/ Michelle Osburn/ /Source
Letters
other issues, medicare, medicaid

Michelle Osburn

September 06, 2022

Haystack Project highlights the need for well-meaning proposals to consider impact on rare patients. →

September 06, 2022/ Michelle Osburn

Read more.

September 06, 2022/ Michelle Osburn/ /Source
Comment Letters
medicaid, medicare, IRA

Michelle Osburn

February 10, 2022

Haystack Project's sign-on letter commenting to CMS' proposed NCA for monoclonal antibodies→

February 10, 2022/ Michelle Osburn

Read more.

February 10, 2022/ Michelle Osburn/ /Source
Letters, Comment Letters, Position Statements
news, medicare, medicaid, other issues

Michelle Osburn

December 07, 2021

Haystack Project Applauds Introduction of the Access to Rare Indications Act→

December 07, 2021/ Michelle Osburn

Read more

December 07, 2021/ Michelle Osburn/ /Source
Letters
rare, RIA, medicare, medicaid, Haystack

Michelle Osburn

October 20, 2021

Guidance on Coordinating Care Provided By Out-of-State Providers for Children with Medically Complex Conditions→

October 20, 2021/ Michelle Osburn

Read more

October 20, 2021/ Michelle Osburn/ /Source
Comment Letters, Letters
medicaid, medicare

Michelle Osburn

August 10, 2021

Tuberous Sclerosis Alliance opposes MACPAC recommendations regarding differential Medicaid rebates for FDA accelerated approval drugs→

August 10, 2021/ Rebecca Balliet

Read more.

August 10, 2021/ Rebecca Balliet/ /Source
Comment Letters, Letters
medicaid, Medicaid, FDA

Rebecca Balliet

July 17, 2021

Support House Passage- HEART Act 5.06.21 (Senate) (1)→

July 17, 2021/ Rebecca Balliet

Read more.

July 17, 2021/ Rebecca Balliet/ /Source
Comment Letters, Letters
medicaid, Medicaid

Rebecca Balliet

July 17, 2021

Support House Passage- HEART Act 5.06.21 (House) →

July 17, 2021/ Rebecca Balliet

Read more.

July 17, 2021/ Rebecca Balliet/ /Source
Letters, Comment Letters
medicaid, Medicaid

Rebecca Balliet

April 12, 2021

Medicaid Network Adequacy (ACE Kids 2019-20)→

April 12, 2021/ Saira Sultan

Read more.

April 12, 2021/ Saira Sultan/ /Source
Position Statements
medicaid, Medicaid

Saira Sultan

March 23, 2021

Haystack opposes MACPAC recommendations regarding differential Medicaid rebates for FDA accelerated approval drugs Mar 23, 2021→

March 23, 2021/ Rebecca Balliet

Read more.

March 23, 2021/ Rebecca Balliet/ /Source
Letters, Comment Letters
medicaid, Medicaid

Rebecca Balliet

July 20, 2020

Haystack comments on CMS’ Medicaid Value Based Purchasing and Best Price Proposed Rule→

July 20, 2020/ Rebecca Balliet

Read more.

July 20, 2020/ Rebecca Balliet/ /Source
Comment Letters, Letters
medicaid, Medicaid

Rebecca Balliet

April 17, 2020

Haystack comments on Accelerating Kids' Access to Care Act (Senate)→

April 17, 2020/ Rebecca Balliet

Read more.

April 17, 2020/ Rebecca Balliet/ /Source
Letters, Comment Letters
medicaid, Medicaid

Rebecca Balliet

April 17, 2020

Haystack comments on Accelerating Kids' Access to Care Act, HR 5900 (House)→

April 17, 2020/ Rebecca Balliet

Read more.

April 17, 2020/ Rebecca Balliet/ /Source
Letters, Comment Letters
medicaid, Medicaid

Rebecca Balliet

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The Haystack Project is a 501(c)3 nonprofit that brings together patients organizations representing patients suffering from or caring for patients with extremely rare diseases. Our mission is to educate policymakers and other stakeholders about the need for policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.