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September 06, 2022

Haystack Project highlights the need for well-meaning proposals to consider impact on rare patients. →

September 06, 2022/ Michelle Osburn

Read more.

September 06, 2022/ Michelle Osburn/ /Source
Comment Letters
medicaid, medicare, IRA

Michelle Osburn

  • FDA needs to be more flexible ...
  • Haystack Responds to HHS RFI on ...

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The Haystack Project is a 501(c)3 nonprofit that brings together patients organizations representing patients suffering from or caring for patients with extremely rare diseases. Our mission is to educate policymakers and other stakeholders about the need for policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.