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March 30, 2023

Press Release: Victoria Blatter Joins Haystack Project’s Board of Directors→

March 30, 2023/ Michelle Osburn

Read more.

March 30, 2023/ Michelle Osburn/ /Source
news, Haystack

Michelle Osburn

December 07, 2021

Haystack Project Applauds Introduction of the Access to Rare Indications Act→

December 07, 2021/ Michelle Osburn

Read more

December 07, 2021/ Michelle Osburn/ /Source
Letters
rare, RIA, medicare, medicaid, Haystack

Michelle Osburn

July 19, 2021

CURES 2.0 Letter

July 19, 2021/ Rebecca Balliet

Read more.

July 19, 2021/ Rebecca Balliet/ /Source
Letters, Comment Letters
other issues, Haystack

Rebecca Balliet

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The Haystack Project is a 501(c)3 nonprofit that brings together patients organizations representing patients suffering from or caring for patients with extremely rare diseases. Our mission is to educate policymakers and other stakeholders about the need for policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.