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August 17, 2023

Access to Rare Indications Toolkit→

August 17, 2023/ Michelle Osburn

Read more.

August 17, 2023/ Michelle Osburn/ /Source
Letters
rare

Michelle Osburn

August 17, 2023

DRAFT: Haystack expresses gratitude for the support of Representatives and the "PROTECT Act"→

August 17, 2023/ Michelle Osburn

Read more.

August 17, 2023/ Michelle Osburn/ /Source
Letters, Comment Letters
rare, protect

Michelle Osburn

September 28, 2022

Haystack Comments to AHRQ on CED Recommendations Protecting Patients→

September 28, 2022/ Michelle Osburn

Read more.

September 28, 2022/ Michelle Osburn/ /Source
Comment Letters
rare, cancer, Comments to AHRQ

Michelle Osburn

June 01, 2022

The Access to Rare Indications Act could be a game-changer for millions of Americans→

June 01, 2022/ Michelle Osburn

Read more.

June 01, 2022/ Michelle Osburn/ /Source
rare

Michelle Osburn

March 07, 2022

STAT on Access to Rare Indications Act

March 07, 2022/ Michelle Osburn

Read more here.

March 07, 2022/ Michelle Osburn/ /Source
news, rare

Michelle Osburn

February 21, 2022

Rep. Matsui releases "Dear Colleagues" letter, asking for co-sponsors for HR6160.→

February 21, 2022/ Michelle Osburn

Read more.

February 21, 2022/ Michelle Osburn/ /Source
Letters
rare

Michelle Osburn

December 07, 2021

Haystack Project Applauds Introduction of the Access to Rare Indications Act→

December 07, 2021/ Michelle Osburn

Read more

December 07, 2021/ Michelle Osburn/ /Source
Letters
rare, RIA, medicare, medicaid, Haystack

Michelle Osburn

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The Haystack Project is a 501(c)3 nonprofit that brings together patients organizations representing patients suffering from or caring for patients with extremely rare diseases. Our mission is to educate policymakers and other stakeholders about the need for policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.