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January 25, 2021

Haystack Project Opposes Administration’s “Most Favored Nation Policy” for Medicare Drug Costs→

January 25, 2021/ Rebecca Balliet

Read more.

January 25, 2021/ Rebecca Balliet/ /Source
Comment Letters, Letters
medicare

Rebecca Balliet

January 25, 2021

Most Favored Nation Model Letter→

January 25, 2021/ Rebecca Balliet

Read more.

January 25, 2021/ Rebecca Balliet/ /Source
Letters, Comment Letters
medicare

Rebecca Balliet

January 06, 2021

Stark and Anti-Kickback Statute Modernization Letter→

January 06, 2021/ Rebecca Balliet

Read more.

January 06, 2021/ Rebecca Balliet/ /Source
Comment Letters, Letters
other issues

Rebecca Balliet

December 28, 2020

Haystack Joins Others in Opposing Copay Accumulators→

December 28, 2020/ Rebecca Balliet

Read more.

December 28, 2020/ Rebecca Balliet/ /Source
Letters, Comment Letters, PatientAssistancePrograms, Patient Assistance Progra
patientAssistancePrograms

Rebecca Balliet

July 20, 2020

Haystack comments on CMS’ Medicaid Value Based Purchasing and Best Price Proposed Rule→

July 20, 2020/ Rebecca Balliet

Read more.

July 20, 2020/ Rebecca Balliet/ /Source
Comment Letters, Letters
medicaid, Medicaid

Rebecca Balliet

June 26, 2020

HELP Committee White Paper→

June 26, 2020/ Rebecca Balliet

Read more.

June 26, 2020/ Rebecca Balliet/ /Source
Letters, Comment Letters
pandemic, covid

Rebecca Balliet

April 17, 2020

Haystack comments on Accelerating Kids' Access to Care Act (Senate)→

April 17, 2020/ Rebecca Balliet

Read more.

April 17, 2020/ Rebecca Balliet/ /Source
Letters, Comment Letters
medicaid, Medicaid

Rebecca Balliet

April 17, 2020

Haystack comments on Accelerating Kids' Access to Care Act, HR 5900 (House)→

April 17, 2020/ Rebecca Balliet

Read more.

April 17, 2020/ Rebecca Balliet/ /Source
Letters, Comment Letters
medicaid, Medicaid

Rebecca Balliet

April 06, 2020

Contract Year 2021 and 2022 Policy and Technical Changes Letter→

April 06, 2020/ Rebecca Balliet

Contract Year 2021 and 2022 Policy and Technical Changes to the Medicare Advantage Program, Medicare Prescription Drug Benefit Program, Medicaid Program, Medicare Cost Plan Program, and Programs of All-Inclusive Care for the Elderly

Read more.

April 06, 2020/ Rebecca Balliet/ /Source
Letters, Comment Letters
Part D - Rx Drugs

Rebecca Balliet

March 27, 2020

Joint Letter re Medicare Home Infusions→

March 27, 2020/ Rebecca Balliet

Read more.

March 27, 2020/ Rebecca Balliet/ /Source
Comment Letters, Letters
covid, medicare

Rebecca Balliet

December 23, 2019

Anti-Kickback Statute Comment Letter→

December 23, 2019/ Rebecca Balliet

Read more.

December 23, 2019/ Rebecca Balliet/ /Source
Letters, Comment Letters, Patient Assistance Progra, PatientAssistancePrograms
patientAssistancePrograms

Rebecca Balliet

December 23, 2019

Cures 2.0 Input Letter→

December 23, 2019/ Rebecca Balliet

Read more.

December 23, 2019/ Rebecca Balliet/ /Source
Letters, Comment Letters
legislation, other issues

Rebecca Balliet

October 02, 2019

Comments to the Centers for Medicare & Medicaid Services’ (CMS’) proposed rule updating the hospital inpatient prospective payment system (IPPS) →

October 02, 2019/ Rebecca Balliet

Read more

October 02, 2019/ Rebecca Balliet/ /Source
Letters, Comment Letters
cms

Rebecca Balliet

September 06, 2019

ICER Curative Treatment Proposed Methodology Circulation→

September 06, 2019/ Rebecca Balliet

Read more.

September 06, 2019/ Rebecca Balliet/ /Source
Letters, Comment Letters
ICER

Rebecca Balliet

June 24, 2019

Haystack IPPS Letter→

June 24, 2019/ Rebecca Balliet

Read more.

June 24, 2019/ Rebecca Balliet/ /Source
Letters, Comment Letters
Medicare

Rebecca Balliet

June 20, 2019

American Porphyria Foundation Letter→

June 20, 2019/ Guest User

Read more.

June 20, 2019/ Guest User/ /Source
Comment Letters, Letters
medicare

Guest User

June 10, 2019

Comments on ICER Value Framework Update for 2020→

June 10, 2019/ Rebecca Balliet

Read now.

June 10, 2019/ Rebecca Balliet/ /Source
Letters, Comment Letters
ICER

Rebecca Balliet

April 08, 2019

OIG/HHS Rebate Rule Comment Letter→

April 08, 2019/ Rebecca Balliet

Download here.

April 08, 2019/ Rebecca Balliet/ /Source
Letters, Comment Letters
other issues

Rebecca Balliet

December 11, 2018

Haystack Calls for Ongoing Dialogue with CMS on Extremely Rare Diseases→

December 11, 2018/ Rebecca Balliet

Read more.

December 11, 2018/ Rebecca Balliet/ /Source
Letters, Comment Letters
Medicare

Rebecca Balliet

November 20, 2018

APF Letter Post-IPPS Proposed Rule Program Memo→

November 20, 2018/ Rebecca Balliet

Download now.

November 20, 2018/ Rebecca Balliet/ /Source
Letters
Medicare

Rebecca Balliet

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The Haystack Project is a 501(c)3 nonprofit that brings together patients organizations representing patients suffering from or caring for patients with extremely rare diseases. Our mission is to educate policymakers and other stakeholders about the need for policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.