Board and Staff — The Haystack Project

Mission-Focused Advisors

Janet Woodcock

Former Acting Commissioner, FDA.

The Board of Directors

Victoria Blatter

Board Member
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James Caro

Past CEO and Board Member
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Christina Nyquist

Board Member
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Lisa Steelman

Board Member

Lynn Taylor

Board Member
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Susan Thornton

Board Member & Patient Representative

Chevese Turner

Board Member

Jenn Wappaus

Treasurer
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Marc Yale

Board Member & Patient Representative
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Bio

Advisors

Holly Kramen

Compliance Attorney
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James M Wickett

Legal Counsel, Hogan Lovells
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Staff and Consultants

Rebecca Balliet

Website Support

Andreas Barth

IT Support

Kara Berasi

CEO

Lydia Boudreaux

Wild Horse Creative Graphic Design

Brad Hedrick

Website Support

Tiara Logan

Administrative Assistant

Misty Osburn

Manager

Kay Scanlan

Consilium Strategies LLC Senior Policy Advisor
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Saira Sultan, JD

Connect 4 Strategies Senior Policy Consultant

Cara Tenenbaum

Strathmore Health Strategy Consultant

The Haystack Project

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The Haystack Project is a 501(c)3 nonprofit that brings together patients organizations representing patients suffering from or caring for patients with extremely rare diseases. Our mission is to educate policymakers and other stakeholders about the need for policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.