Politico AgencyIQ Article: NASEM meeting kicks off study on FDA and EMA processes for rare disease drugs→
/Link to the article with press coverage of the meeting. See page 3 for what the reporter had to say about Haystack’s participation.
Link to the article with press coverage of the meeting. See page 3 for what the reporter had to say about Haystack’s participation.
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The Haystack Project is a 501(c)3 nonprofit that brings together patients organizations representing patients suffering from or caring for patients with extremely rare diseases. Our mission is to educate policymakers and other stakeholders about the need for policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.