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January 12, 2022

How medicine erased Black women from a "White Man's Disease"→

January 12, 2022/ Michelle Osburn

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January 12, 2022/ Michelle Osburn/ /Source
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Michelle Osburn

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The Haystack Project is a 501(c)3 nonprofit that brings together patients organizations representing patients suffering from or caring for patients with extremely rare diseases. Our mission is to educate policymakers and other stakeholders about the need for policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.