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  • Home/
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    • Board and Advisors
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  • FDA/
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May 30, 2017

Meet Ella Murray: The 9-year-old with skin as delicate as a butterfly's wing→

May 30, 2017/ Rebecca Balliet
May 30, 2017/ Rebecca Balliet/ /Source
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Rebecca Balliet

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The Haystack Project is a 501(c)3 nonprofit that brings together patients organizations representing patients suffering from or caring for patients with extremely rare diseases. Our mission is to educate policymakers and other stakeholders about the need for policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.