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    • Rare Disease Approvals
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October 20, 2017

Haystack Project Joins Fellow Patient Orgs in Calling Attention to the MassHealth Section 1115 Demonstration Amendment→

October 20, 2017/ Rebecca Balliet

Read more.

October 20, 2017/ Rebecca Balliet/ /Source
Letters, Comment Letters
Medicaid

Rebecca Balliet

  • Solicitation of New Safe Harbors ...
  • ICER Ultra-Rare Disease Comment

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The Haystack Project is a 501(c)3 nonprofit that brings together patients organizations representing patients suffering from or caring for patients with extremely rare diseases. Our mission is to educate policymakers and other stakeholders about the need for policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.