The Haystack Project is committed to the Rare and Ultra Rare Disease Community.  It brings together Innovators, Patients and Caregivers to educate and advocate for reimbursement policies that recognize the unique circumstances of extremely rare conditions and treatments.
 

 

Issues

Resources

News

 

Patient Stories

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About Us

 

Advisors

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James M. Wickett

Legal Counsel, Hogan Lovells

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Elizabeth Thompson

Nonprofit Advisor, Transcend4Good

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holly kramen

Compliance Attorney

Additional advisors coming soon.

 

Sponsors

Sponsors list coming soon

 

Partners