The Haystack Project is committed to the Rare and Ultra Rare Disease Community.  It brings together Innovators, Patients and Caregivers to educate and advocate for reimbursement policies that recognize the unique circumstances of extremely rare conditions and treatments.
 

 

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Advisors

Additional advisors coming soon.

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James M. Wickett

Legal Counsel, Hogan Lovells

 
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Elizabeth Thompson

Nonprofit Advisor, Transcend4Good

 
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holly kramen

Compliance Attorney

 
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Jugna Shah

Provider Reimbursement Policy Advisor, Nimitt Consulting Inc