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The Haystack Project

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The Haystack Project
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Featured
Haystack's AA Pathway "Reforms"
Apr 29, 2022
Haystack's AA Pathway "Reforms"
Apr 29, 2022
Apr 29, 2022
Haystack Project's sign-on letter commenting to CMS' proposed NCA for monoclonal antibodies
Feb 10, 2022
Haystack Project's sign-on letter commenting to CMS' proposed NCA for monoclonal antibodies
Feb 10, 2022
Feb 10, 2022
Medicaid Network Adequacy (ACE Kids 2019-20)
Apr 12, 2021
Medicaid Network Adequacy (ACE Kids 2019-20)
Apr 12, 2021
Apr 12, 2021
Bundled Payments and Rare Disease Ombudsman
Apr 12, 2021
Bundled Payments and Rare Disease Ombudsman
Apr 12, 2021
Apr 12, 2021
  • Home/
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  • Policy/Comments/
    • Inflation Reduction Act
    • Medicare
    • Section 340b
    • Medicaid
    • FDA
    • ICER
  • Patient Stories/
  • Join/
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The Haystack Project is a 501(c)3 nonprofit that brings together patients organizations representing patients suffering from or caring for patients with extremely rare diseases. Our mission is to educate policymakers and other stakeholders about the need for policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.