Patient Assistance

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Jan 12, 2022

Copay Accumulator Fact Sheet

Jan 12, 2022

Dec 28, 2020

Haystack Joins Others in Opposing Copay Accumulators

Dec 28, 2020

Dec 23, 2019

Anti-Kickback Statute Comment Letter

Dec 23, 2019

Mar 7, 2019

HHS Proposal on Rebates - Safe Harbor

Mar 7, 2019

Feb 27, 2018

Safe Harbors for Rare

Feb 27, 2018

Feb 26, 2018

Solicitation of New Safe Harbors and Special Fraud Alerts

Feb 26, 2018

The Haystack Project urges the OIG to develop a safe harbor to enable financial assistance from charitable entities, and directly from a manufacturer, so that patients can access the rare disease treatment they need.

Feb 26, 2018

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Sep 28, 2016

Non-Profits At Odds On How To Address Third-Party Payment Concerns

Sep 28, 2016

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The Haystack Project is a 501(c)3 nonprofit that brings together patients organizations representing patients suffering from or caring for patients with extremely rare diseases. Our mission is to educate policymakers and other stakeholders about the need for policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.

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