Patient Group Membership
Patient Group Membership
If this dues schedule is not appropriate for your budget, please reach out to us.
We will work with you to find an appropriate level as our goal is 100% participation!
If this dues schedule is not appropriate for your budget, please reach out to us.
We will work with you to find an appropriate level as our goal is 100% participation!
Engage in our efforts to support Ultra Rare advocacy.
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Please consider making a tax-deductible donation to support the Haystack Project today.
The Haystack Project is a 501(c)3 nonprofit that brings together patients organizations representing patients suffering from or caring for patients with extremely rare diseases. Our mission is to educate policymakers and other stakeholders about the need for policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.