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Capitol Hill Day

Name: Capitol Hill Day — The Haystack Project
Start: 2017-09-11T16:30:00-0400
End: 2017-09-11T17:30:00-0400

Monday, September 11, 2017
4:30 PM 5:30 PM 16:30 17:30

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The Haystack Project is a 501(c)3 nonprofit that brings together patients organizations representing patients suffering from or caring for patients with extremely rare diseases. Our mission is to educate policymakers and other stakeholders about the need for policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.

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