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October 21, 2016

Orphan Drug Utilization and Pricing Patterns (2012 - 2014)

October 21, 2016/ Saira Sultan

Orphan drugs- developed to treat rare diseases affecting patient populations of fewer than 200,000 people annually - have become a lucrative business opportunity for drug makers. These medications made up almost half of all new drugs approved by the U.S. Food and Drug Administration (FDA) in 2015. 

Read here.

October 21, 2016/ Saira Sultan/ /Source
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The Haystack Project brings together Innovators dedicated to researching and developing treatments for extremely rare diseases with Patients suffering from or caring for them.

Our Mission:
Advocate for reimbursement policies that recognize the unique circumstances of extremely rare conditions and treatments and expand incentives critical to ensuring they can reach patients.