Join the Haystack Project
Pursuant to federal tax law, 501(c)(3) members are allowed to allocate up to an “unsubstantial” (generally 5% -10%) percentage of their budgets on lobbying activities without in any way jeopardizing their tax exempt status.
Receive advocacy updates.
Participate in monthly policy calls.
Attend in-person meetings.
Advise on content -- and have the opportunity to sign on -- to letters to policymakers on ultra orphan issues.
Participate in Hill and other meetings as appropriate.
To learn more about sponsorship opportunities, please contact Saira Sultan at firstname.lastname@example.org
Patient Advocacy Group Membership
Join the Haystack Project as a Patient Advocacy Group below.